This blog is dedicated to Gabrielle Jane. Born with a rare Neurological condition called Hydranencephaly, "Gabby" was given no hope after being diagnosed three days after birth. This is "Gabby's" journey of life and my journey of healing after her passing.
Saturday, September 18, 2010
Welcome Home!!!
Well it was early July 2009 when I finally got the chance to make it home. My home was fabulous, I had a pretty bassinet and lots of clothes and toys. Mommy and I slept mainly in the living room because I had so much medical equiptment going. I had to be given lots of antibiotics and had to be given meds at all hours of the night. I was given my meds through an IV and of course I had to be fed every 2-3 hours as well. Boy did I hate my feed tube! There is nothing like getting your food through a tube through the nose. I allowed my mom to use the feed tube for a couple weeks, but I couldn't take it any longer so I ripped it out of my nose. My mom told me that if I ate well using my bottle then she wouldn't put the feed tube back in. I have now been without a feed tube for over a year, whoo hoo! Things were very busy at my home. I always had people coming to see me and I was always being held and kissed. I loved all the attention though.
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