As Time Goes By

To continue where we last left off, I was just diagnosed with Hydranencephaly.  I remained at Children's Hospital for a week after I was born.  Doctors didn't want me to go home right away because Mommy and daddy had to be prepared to take me home and to care for me.  Well there was a lot of preparation needed.  Mommy had to be trained on how to feed me because I was given an NJ feeding tube http://www.answers.com/topic/feeding-tube.  Mommy was pretty scared of the feeding tube but I knew she could do it.  The doctors had to get me set up with Hospice http://www.cincinnatichildrens.org/svc/alpha/s/hospice/default.htm. prior to me being discharged as well.  I was released just a little after a week of my birth.  Boy was I so excited to be going home and to start my wonderful life my with my mommy and daddy.