Today marks the one year anniversary of Gabby's passing. The past year has been quite a journey. A journey of many ups and downs. Today has been one of the most difficult days of this journey. It has been nearly as difficult as the day she died. I made a promise to Gabby that I will not let grief overcome me. I will remain strong, and continue to live my life honoring Gabby. With Gabby by my side, I am determined to make it through this journey.
Today, I decided to honor Gabby by taking her some beautiful red roses, an angel windchime, and some beautiful balloons that I released into the sky. I watched the balloons as they soared high above the trees, then disappear beyond the clouds, as if they entered into heaven for Gabby to grab. Just the thought of her being in one of the most beautiful places on earth, free of harm, free of pain, surrounded by angels as they sing to all our loved ones, brought so much peace and happiness to me.
As the time of her actual death draws near, I find myself coping with some of the tragic thoughts. I am finding myself reliving the last moments of her life. These thoughts often enter my mind, but have been much harder today. These thoughts, by far, have been one of the hardest parts of dealing with grief. There is nothing like reliving your child's death over and over again. I know, this is a normal part of grief, and it is a part of the PTSD I now deal with. The frequency of these thoughts are less often and I am grateful for that. I am not sure if these thoughts will ever subside completely, but I have faith that as time goes on...these thoughts will be easier to cope with.
I had a family member ask me the other day if the pain of losing my daughter has eased. I don't ever believe I will get over the pain of losing my daughter. The pain will always remain. One year after her passing, I find that I have more good days than bad. On the downside, when I do have a bad day, the pain is far greater than the bad days in the beginning. Perhaps that is because the painful days occur less often. The sad days are emotionally draining, and are a very difficult part of this journey, but to me, they just remind me of how much my daughter is missed and how much she was loved. They have become a part of my life and I have accepted that. It is for that reason, I will always welcome those sad days.
This blog is dedicated to Gabrielle Jane. Born with a rare Neurological condition called Hydranencephaly, "Gabby" was given no hope after being diagnosed three days after birth. This is "Gabby's" journey of life and my journey of healing after her passing.
Saturday, November 26, 2011
Sunday, November 20, 2011
Dear God
Dear God,
In six short days it will be one year since your son...Jesus, took my daughter's hand, and lead her into Heaven's Kingdom to be with you. Although, I have come to terms with my daughter's death and have accepted it, I am still full of so many questions and there is so much I still don't understand.
I often hear people tell me to have faith and there is a reason for everything. There have been many times after Gabby's passing that I have questioned my faith. I have never doubted you or your existence, but sometimes I wonder why such awful things have to happen. Why do you allow so much pain and heartache? Why is it, I often feel so alone on my journey? Why is it that my child had to die? Why is it, that no matter how hard I try, my life gets harder? I often wonder what I did to deserve so much pain and heartache. Perhaps, I have not accepted my daughter's death. Maybe, I never will. Perhaps it is too early in my grief to know. Often, it seems as if my prayers go unanswered. One of the hardest parts of my journey has been questioning my faith. I just feel like when I need you the most, you arent here. At times, I am so angry with you. I don't want to be angry with you. I can't be angry with you! I have to have peace in my heart. Don't you understand? I need to have my faith...I need to know that my daughter and I will be together again. I need to know that someday, I will be forgiven for my doubts.
I've been told Angels know the secrets to Heaven. The secrets to the answers I long to know. My daughter is among those angels. I know in your time, I will know the answers I long for. Perhaps, one day, Gabby will whisper in the wind and tell me not to worry and that everything will be ok. Until then, I must keep my faith, and believe that although you might not answer right away...at some point...my prayers will be answered.
Love Truly,
Jen
In six short days it will be one year since your son...Jesus, took my daughter's hand, and lead her into Heaven's Kingdom to be with you. Although, I have come to terms with my daughter's death and have accepted it, I am still full of so many questions and there is so much I still don't understand.
I often hear people tell me to have faith and there is a reason for everything. There have been many times after Gabby's passing that I have questioned my faith. I have never doubted you or your existence, but sometimes I wonder why such awful things have to happen. Why do you allow so much pain and heartache? Why is it, I often feel so alone on my journey? Why is it that my child had to die? Why is it, that no matter how hard I try, my life gets harder? I often wonder what I did to deserve so much pain and heartache. Perhaps, I have not accepted my daughter's death. Maybe, I never will. Perhaps it is too early in my grief to know. Often, it seems as if my prayers go unanswered. One of the hardest parts of my journey has been questioning my faith. I just feel like when I need you the most, you arent here. At times, I am so angry with you. I don't want to be angry with you. I can't be angry with you! I have to have peace in my heart. Don't you understand? I need to have my faith...I need to know that my daughter and I will be together again. I need to know that someday, I will be forgiven for my doubts.
I've been told Angels know the secrets to Heaven. The secrets to the answers I long to know. My daughter is among those angels. I know in your time, I will know the answers I long for. Perhaps, one day, Gabby will whisper in the wind and tell me not to worry and that everything will be ok. Until then, I must keep my faith, and believe that although you might not answer right away...at some point...my prayers will be answered.
Love Truly,
Jen
Saturday, August 27, 2011
Picking Up The Pieces
"It has been said, 'time heals all wounds.' I do not agree. The wounds remain. In time, the mind, protecting its sanity, covers them with scar tissue and the pain lessens. But it is never gone" ~Rose Kennedy
I am an angel mom. I have lived the pain that most people cannot imagine. A pain, far from any pain imaginable. A pain, that changes your life forever. It has been nine months since I began this new life. It is a life far from my old one and a life I must learn to live.
I have yet to cope with this new way of living. The person I once was...is no longer. I have not been able to identify exactly who the new me is and this is something I fight with daily. I can say that the loss of my daughter has brought many positive changes to my life. I see the beauty in things I never imagined I would. The rain, once an incovience, has become the most beautiful of all things. I imagine the rain as tears falling from heaven as the angels weep for those they miss. I always tell Gabby when the rain falls, that I miss her too. The sun, so warm, reminds me of how much my daughter loved to be in the warmth of its power. It was my daughters means of seeing from the cortical blindness that affected her vision. The moon, has become my nightlight from heaven. It shines its brightness on me as my Gabby watches from above.
After losing Gabby, I never thought there would be any beauty in life, but I was wrong. The world has become more beautiful. I never imagined I would smile again, but just like the tears come, so do the smiles and laughs. I recently found myself having a good day, something I never thought could happen after Gabby left this world. The tears that once fell daily, fall less often. I still struggle with the feeling of lonlieness and it occurs quite often. I could be surrounded by many friends and family, but yet feel so alone. I envy those parents who still have their children. I envy those who get to see their child grow, laugh, play, and do the things I will never get to enjoy with my daughter. I still deal with crying spells and have accepeted the fact that they will hit me without warning and at any place. I believe these days will be a part of my new life and will last until the day I join Gabby.
I have not overcome my child's death, nor do I think I will ever overcome it. I am grateful that my bad days have lessened and I am able to smile, laugh, and see such wonderful beauty in this world. I have a long way to go on this journey but I now have hope, and that is a big step in this journey. I have began to pick up the pieces in my life and although I know I will never be able to pick up all the pieces, what little pieces I have picked up is a great start.
I am an angel mom. I have lived the pain that most people cannot imagine. A pain, far from any pain imaginable. A pain, that changes your life forever. It has been nine months since I began this new life. It is a life far from my old one and a life I must learn to live.
I have yet to cope with this new way of living. The person I once was...is no longer. I have not been able to identify exactly who the new me is and this is something I fight with daily. I can say that the loss of my daughter has brought many positive changes to my life. I see the beauty in things I never imagined I would. The rain, once an incovience, has become the most beautiful of all things. I imagine the rain as tears falling from heaven as the angels weep for those they miss. I always tell Gabby when the rain falls, that I miss her too. The sun, so warm, reminds me of how much my daughter loved to be in the warmth of its power. It was my daughters means of seeing from the cortical blindness that affected her vision. The moon, has become my nightlight from heaven. It shines its brightness on me as my Gabby watches from above.
After losing Gabby, I never thought there would be any beauty in life, but I was wrong. The world has become more beautiful. I never imagined I would smile again, but just like the tears come, so do the smiles and laughs. I recently found myself having a good day, something I never thought could happen after Gabby left this world. The tears that once fell daily, fall less often. I still struggle with the feeling of lonlieness and it occurs quite often. I could be surrounded by many friends and family, but yet feel so alone. I envy those parents who still have their children. I envy those who get to see their child grow, laugh, play, and do the things I will never get to enjoy with my daughter. I still deal with crying spells and have accepeted the fact that they will hit me without warning and at any place. I believe these days will be a part of my new life and will last until the day I join Gabby.
I have not overcome my child's death, nor do I think I will ever overcome it. I am grateful that my bad days have lessened and I am able to smile, laugh, and see such wonderful beauty in this world. I have a long way to go on this journey but I now have hope, and that is a big step in this journey. I have began to pick up the pieces in my life and although I know I will never be able to pick up all the pieces, what little pieces I have picked up is a great start.
Saturday, July 9, 2011
The Lesson: Patience
Dwight D. Eisenhower wrote "There's no tragedy in life like the death of a child. Things never get back to the way they were". Often, this quote runs through my mind as I try to piece together what remains of me after the loss of my daughter. It has been nearly eight months since I began this journey and and I frequently wonder what benefits could come from such a horrible and painful loss.
I have been blessed to meet some of the most amazing people throughout my journey. Individuals who know all too well, the pain of losing a child. These grieving parents have provided me with hope when I feel as if all hope is gone. They have provided me with strength when I feel my weakest and they have provided me with company when I feel my lonliest.
Although, my friends who've lost a child provide me and have comforted me in so many ways, they are not the only ones that I am grateful for. I will be forever grateful to friends, family, and my social network friends/family who have been by my side to comfort me. Since this journey begin (even before Gabby's passing) I have met some of the most amazing people. People who I may have never met, but feel their love from places and countries all over the world. Without the support of friends, family, and my social network group I would have never made it this far.
When you lose a child, the pain is unimaginable. Unless you have lost a child yourself, you cant begin to understand the pain that is felt. Although, I realize that no one is aware of my feelings except other grieving parents. I now realize that even those who are close to me, but have not lost a child, still feel my pain.
Today, I went to visit Gabby at the cemetery. On my way their, I was thinking about my journey. I started to get upset as I thought to myself, "why doesn't anyone ever talk about Gabby"? My previous answer to that question was, people have moved on, they have forgotten about Gabby. Then I thought to myself, I know no one has forgot Gabby. Death is an uncomfortable subject. It is a subject that is avoided at all cost. It is even more uncomfortable when it involves a loss as tragic as a child. I remember becoming upset as I brought up Gabby in conversations and watched those I was talking to begin showing signs of nervousness. You would often see a shifting in position, the person moving further away, and them no longer giving eye contact. I took it offensively, when really it was nothing more than a reaction to an uncomfortable subject. We have all dealt with the loss of someone in our life and it is never an easy subject to discuss. I have been guilty of changing the subjects during uncomfortable conversations or completly avoiding them all together. I became more engaged in my thoughts and wondered if I could be responsible for many of the reactions and why people are so scared to discuss the loss of my child. I will be the first to admit that I have been short with people who have said things that I feel are inappropriate. Perhaps it is this reaction that scares people from approaching grieving parents. There is a quote that says "Unless you have lost a child, don't tell me how to feel". Before my child died, I was a non-grieving parent who often said things that now offend me. I am guilty of saying "I need a break", "I just wish I could sleep", "I wish I had a day with no doctor's appointments". It wasn't until my child's passing that those things I once wanted, now became times I treasured and wish I still had. Many of us never anticipated losing our child, but it happened, and it could happen to anyone.
Patience is a necessity for grieving parents. We need to have the patience of all those in our lives. Allow us the time to grieve and heal. We will never heal completely and each person will grieve differently. Not only do I as a grieving parent need patience, but as a greiving mom I need to be patient to those who don't fully understand what I am going through...just not that long ago I was that person.
I have been blessed to meet some of the most amazing people throughout my journey. Individuals who know all too well, the pain of losing a child. These grieving parents have provided me with hope when I feel as if all hope is gone. They have provided me with strength when I feel my weakest and they have provided me with company when I feel my lonliest.
Although, my friends who've lost a child provide me and have comforted me in so many ways, they are not the only ones that I am grateful for. I will be forever grateful to friends, family, and my social network friends/family who have been by my side to comfort me. Since this journey begin (even before Gabby's passing) I have met some of the most amazing people. People who I may have never met, but feel their love from places and countries all over the world. Without the support of friends, family, and my social network group I would have never made it this far.
When you lose a child, the pain is unimaginable. Unless you have lost a child yourself, you cant begin to understand the pain that is felt. Although, I realize that no one is aware of my feelings except other grieving parents. I now realize that even those who are close to me, but have not lost a child, still feel my pain.
Today, I went to visit Gabby at the cemetery. On my way their, I was thinking about my journey. I started to get upset as I thought to myself, "why doesn't anyone ever talk about Gabby"? My previous answer to that question was, people have moved on, they have forgotten about Gabby. Then I thought to myself, I know no one has forgot Gabby. Death is an uncomfortable subject. It is a subject that is avoided at all cost. It is even more uncomfortable when it involves a loss as tragic as a child. I remember becoming upset as I brought up Gabby in conversations and watched those I was talking to begin showing signs of nervousness. You would often see a shifting in position, the person moving further away, and them no longer giving eye contact. I took it offensively, when really it was nothing more than a reaction to an uncomfortable subject. We have all dealt with the loss of someone in our life and it is never an easy subject to discuss. I have been guilty of changing the subjects during uncomfortable conversations or completly avoiding them all together. I became more engaged in my thoughts and wondered if I could be responsible for many of the reactions and why people are so scared to discuss the loss of my child. I will be the first to admit that I have been short with people who have said things that I feel are inappropriate. Perhaps it is this reaction that scares people from approaching grieving parents. There is a quote that says "Unless you have lost a child, don't tell me how to feel". Before my child died, I was a non-grieving parent who often said things that now offend me. I am guilty of saying "I need a break", "I just wish I could sleep", "I wish I had a day with no doctor's appointments". It wasn't until my child's passing that those things I once wanted, now became times I treasured and wish I still had. Many of us never anticipated losing our child, but it happened, and it could happen to anyone.
Patience is a necessity for grieving parents. We need to have the patience of all those in our lives. Allow us the time to grieve and heal. We will never heal completely and each person will grieve differently. Not only do I as a grieving parent need patience, but as a greiving mom I need to be patient to those who don't fully understand what I am going through...just not that long ago I was that person.
Monday, June 6, 2011
The Story of The Stone
On Sunday I was visiting Gabby at the cemetery. I took her a beautiful boquet of crazy daisies and sat next to her marker. The cemetery must have recently cut grass because there was some grass covering her marker. I gently took my hand and swept the grass off and was telling her the whole time, not to worry, that I would clean it up. Once all the grass was removed, I continued talking to Gabby. As I was talking to her, I was taking my pointer finger and was outlining the balloons and teddy bear on her marker. I was telling her how much I missed her and there wasn't a day that went by where I didn't think of her. I briefly removed my finger from her marker, looked up to the sky and told her that I loved her very much and that I wasn't sure if I was strong enough to deal with her loss. As I looked back down, I immediately saw this beautiful stone. It appeared in the same spot that I was outlining with my pointer finger. I immediately picked it up and grasped my hand tightly around it as I placed it next to my heart.
When you lose someone as close to you as a child, I have found that there are two things that keep me going. These two things are the belief that I know someday I will be reunited with her, and the other is believing that somehow, until we are reunited, she will always be near me. I can't be for sure if that stone was a coincidence or if perhaps it may have been a sign, but all I can say is that it is the small things like that in which keeps me going.
When you lose someone as close to you as a child, I have found that there are two things that keep me going. These two things are the belief that I know someday I will be reunited with her, and the other is believing that somehow, until we are reunited, she will always be near me. I can't be for sure if that stone was a coincidence or if perhaps it may have been a sign, but all I can say is that it is the small things like that in which keeps me going.
Thursday, May 26, 2011
My Dearest Gabby
Dear Gabby,
Today it has been six months since you left. Sometimes I think I am doing ok, but then I get overwhelmed with grief and its almost impossible to function. I'm not really sure if that is ever going to change or not. There isn't a minute that goes by where I don't think of you. I find myself seeing so many little ones in public and all I do is think of what you would be doing now.
Anymore, I just find life so difficult. It is so hard to continue without you by my side. Sometimes I wonder how long it will be until I am with you again. The other day someone was predicting the end of the world and I didn't even care. I'm not sure if that is normal or not. All I do is think of being with you. Sometimes I can feel your presence, but I haven't lately. I guess you must be busy playing with all the little children in heaven.
Gabby, I think of you all the time in heaven and wonder what it must be like up there. I wonder what you are doing all the time and wonder if you ever leave me signs. I love you so much Gabby.
I have to go now, I just cant continue your letter baby.
Today it has been six months since you left. Sometimes I think I am doing ok, but then I get overwhelmed with grief and its almost impossible to function. I'm not really sure if that is ever going to change or not. There isn't a minute that goes by where I don't think of you. I find myself seeing so many little ones in public and all I do is think of what you would be doing now.
Anymore, I just find life so difficult. It is so hard to continue without you by my side. Sometimes I wonder how long it will be until I am with you again. The other day someone was predicting the end of the world and I didn't even care. I'm not sure if that is normal or not. All I do is think of being with you. Sometimes I can feel your presence, but I haven't lately. I guess you must be busy playing with all the little children in heaven.
Gabby, I think of you all the time in heaven and wonder what it must be like up there. I wonder what you are doing all the time and wonder if you ever leave me signs. I love you so much Gabby.
I have to go now, I just cant continue your letter baby.
Tuesday, May 17, 2011
Journey of the Bees: The Brayden Alexander Global Foundation For Hydranencephaly
http://networkedblogs.com/hVyOK
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